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Discuss status of conversations with Truveta & potential next steps
Align on what we reasonably think we can deliver out of the working group
Discussion topics
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Discuss status of conversations with Truveta & potential next steps
Discussed the possibility of establishing a case study / prototype with Truveta during MDIC Annual Public Forum in September.
Truveta has a network of >30 health systems and touts regulatory-grade data (structured and unstructured).
Also is engaged with NEST Marketplace (not yet sure to what extent).
Discussions have led to believe Truveta or a company like them, OR even NEST may already have aims of establishing some kind of IVD data hub.
Accordingly, we’re in fact-finding mode trying to connect dots for a potential use case.
Key challenge however is lack of funding.
Outputs from this working group
We have established baseline requirements and discussed tangential initiatives (e.g. NEST, CRWDi, etc) which are potentially influencing our focus here
The team further discussed the primary value add at this stage would be to broker a practical use case to demonstrate the value proposition of an IVD data hub and to articulate clear needs on data inputs for such a hub. However the key challenges remain:
No funding available for such a use case limits our ability to have meaningful discussions with potential brokers (discussing with MDIC is an option but there again, funding via grants (most likely) would be needed)
Bandwidth to drive from concept to a detailed business case to generate funding would be prohibitive for the team members at this stage.
Recommending to discuss in more detail with Steering Committee
Action items
Quick decisions not requiring context or tracking
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