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2023-10-25 Communications Workgroup Meeting notes

2023-10-25 Communications Workgroup Meeting notes

Date

Oct 25, 2023

Attendees

Name

Organization

Role

Present?

Name

Organization

Role

Present?

 Andrea Pitkus

 University of Wisconsin-Madison

 Steering Committee member

Yes

 Eric Crugnale

 

 Steering Committee member

Yes

Nanguneri Nirmala

 

Steering Committee member

Yes

Mehdi Nassiri

Indiana University

Steering Committee member

No

Stacy Lange

Patient Advocate

Steering Committee member

Yes

Kevin Schap

CAP

All SHIELD

Yes

 

Goals/Agenda

  • Review prior meeting minutes.

  • Discuss moving meeting time

    • Nirmala - Good

    • Andrea - Variable

    • Stacy - 12 is better, but will still plan to participate

    • Kevin - Good

    • Eric - Variable

  • Review action items from last meeting

    • Web hosting

      • Hi Eric and Andrea,

         

        I've been giving some thought to and did some preliminary research for our web hosting needs. While this is not my area of knowledge, I'd like to brain-storm some ideas:

         

        Purpose and Technical Requirements:

        • First, I'd like to confirm that the website's primary function would be informational with a basically static structure, meaning it won't need to have an integrated database. CORRECT

         

        Nonprofit Status:

        • Are we officially registered as a nonprofit, or is this a step we're considering in the near future? This could potentially lead to benefits like free hosting from providers. SHIELD is not a non-profit organization and there is no plan to do so. No legal status (not incorporated). A FDA Collaborative Community?

         

        FDA Collaboration:

         

        Domain Name Registration:

        • SquareSpace's offer at $12 per year seems very reasonable. I could explore discounts for paying ahead to save on costs, if that would be feasible for us to do

         

        Hosting Costs and Benefits:

        • If we can confirm our nonprofit status and provide the necessary documentation, there could be an opportunity to have SquareSpace (or another provider) waive the hosting cost. Their fee for non-commerce hosting is $16 per month. This includes user-friendly templates, security, and scalability for potential traffic growth. Paying annually at $129 could be a cost-effective strategy if we have the funding, in order to minimize the impact of future price increases.

          • DISCUSSION: This seems reasonable and probably the simplest way to move forward if we could get a participant company to “donate” the annual fee ($129 + $12). Could easily be expensed on a corporate credit card for example.

        Domain Names: shieldlabcc.com . shieldcolab.com shieldcollLABorative.com available

    • LinkedIn

  • Discuss creating additional content:

    • “What is SHIELD” article

    • LIS Future proofing

    • SHIELD “Stories” - Why it matters

Discussion topics

Time

Item

Presenter

Notes

Time

Item

Presenter

Notes

 

 

 









Action items

Quick decisions not requiring context or tracking

For quick, smaller decisions that do not require extra context or formal tracking, use the “Add a decision…” function here.

Decisions requiring context or tracking

For decisions that require more context (e.g., documentation of discussion, options considered) and/or tracking, use the decision template to capture more information.